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Run, walk and learn about scleroderma

Annual 5K fundraiser set for Saturday, June 17

By Andrew Wagstaff
Maritime Runner
June 9, 2017

BEDFORD, N.S. – There is no known cause, and no known cure.
About one in every 2,500 Canadians – including about 200 Nova Scotians - live with scleroderma, a rare auto-immune disease causing tightening of the skin and serious damage to internal organs.
The effect of scleroderma on patients, their families and friends is life changing, and the Scleroderma Society of Nova Scotia is committed to providing them with support, and increasing public awareness through events like the upcoming Run/Walk in the Park for Scleroderma on Saturday, June 17.

Participants gather for a group photo at last year’s Run/Walk for Scleroderma in Bedford, N.S. This year’s event will take place on Saturday, June 17.

Photo courtesy of Jason Doucette

“It’s important that patients living with scleroderma are aware of the support systems in place,” said Jason Doucette, president of the Scleroderma Society of Nova Scotia. “Our organization also promotes awareness of the disease, ensuring patients are properly diagnosed and receive appropriate treatment.”
The run/walk is a national fundraiser, with more than $350,000 raised in 2016. This year will be the sixth anniversary of the event in Nova Scotia, which includes a 5K and 1K run/walk, as well as a family barbecue.
The 5K route, mostly flat with a couple of slight inclines, is an out-and-back along the Bedford waterfront and shore drive, while the 1K walk is along the waterfront at DeWolf Park.
Local MP and Speaker of the House Geoff Regan will be on hand this year to deliver greetings on behalf of the federal government, while a provincial proclamation will be presented, declaring June as Scleroderma Awareness Month in Nova Scotia.
“The Run/Walk not only acts as our primary fundraiser, but also provides an opportunity for those living with the disease to socialize together and learn from each other,” said Doucette.
A portion of the event’s proceeds will be designated for the David Shea Memorial Patient Support Fund, which financially assists those living with the disease in this region.
Doucette is expecting 100-150 participants this year.
For more information on the Run/Walk for Scleroderma, visit here.